I’ve also wondered many times over the four years I’ve had ndph if it was Lyme.. Living in rural PA it woduln’t be at all out of the ordinary! It’s very frustrating how the test results work, they seem so useless! I also have a lot of other symptoms. I once completed a Lyme symptom checklist that was several pages long and I checked off at least 75% of the symptoms. I have had no results with the doxy, indomethacin, or acyclovir that I took for headaches and are also indicated for Lyme but I’m still far from convinced I don’t actually have it. I just wanted to tell you how hopeful I am that you are on the road to recovery. I’m sure there is some fear in a new diagnosis.. You’ve learned to live with ndph but now things have been turned upside down and you’ve got something new to accept! And even after years of pain its impossible to be patient with the slow progress of your new treatment, not to mention the new addition of side effects of this treatment! I really wanted to encourage you to add some probiotics to your regimen. Short courses of antibiotics can really throw off all your body’s systems and for Lyme you’ve got to do long term big doses and it can really mess up your digestion and your immune system among other things. I’d just hate for you to get some other illness to have to fight too.. Minor or major, I know you just don’t need any more problems! I don’t know if your Lyme dr can help you with choosing something to build the good bacteria but I could definitely send contact info for a good friend of mine who is really educated in holistic medicine and natural living if you’d like. Antibiotics kill everything and people don’t always realize there’s good and bad bacteria. Good luck to you! One day at a time!
The National Heart, Lung, and Blood Institute (NHLBI) recommended dosing for systemic prednisone, prednisolone, or methylprednisolone in pediatric patients whose asthma is uncontrolled by inhaled corticosteroids and long-acting bronchodilators is 1–2 mg/kg/day in single or divided doses. It is further recommended that short course, or "burst" therapy, be continued until the patient achieves a peak expiratory flow rate of 80% of his or her personal best or until symptoms resolve. This usually requires 3 to 10 days of treatment, although it can take longer. There is no evidence that tapering the dose after improvement will prevent a relapse.